"My earliest memories go back to a childhood of typical army life.
Shifting base city to city every three years, making friends and bidding
farewell, all with a smile. But Pune has always been the fondest memory,
a city where we arrived and never left. I was a sports person right
through high school, the never say die attitude a gift of the army
background and resilient genetics. It was also in high school that I had
my first diagnosis of vitiligo. Amidst medical treatment and other home
remedies, I vowed to myself to never let a cosmetic condition hamper my
spirit ever.
I juggle my life playing mom to two brats, running to realise and push
my physical limits and being passionate about encouraging women to make
fitness a part of their lives. As a mom, I have to shift between ninth
std physics and nursery rhymes with equal enthusiasm. Running has added
meaning to my life in a way that cannot be put in words. Whether it's
cutting a few seconds in a half marathon or pushing my body to cross the
finish line in a 50 km ultra..... It all translates to resilience in
life in general. As a fitness trainer, I passionately advocate that
women make fitness a part of their lives and start investing time in
themselves in their busy schedules as homemakers and career women.
Vitiligo is more a mind game for a person to win and I hope to encourage
those that I can.. To overcome inhibitions about their condition and
achieve their personal goals. If I can have a positive influence on even
one person, it would be achievement enough.
We are only bound by the limits we place on ourselves... If we feed
positive uplifting thoughts to our mind, there exist no limits to talent
and potential within us."
- Zareen
Story of Dr. Maya Tulpule...
""It all started at the age of 10 years. I distinctly remember the severe
illness of measles and chickenpox which grounded me for 21 days. I
missed my 5th standard final exam and was promoted to 6th standard.
About 1 month later one small spot appeared on back which was noticed by
my cousin sister. Within few days new spots started appearing all over.
My father was in US for his PhD studies, so my uncle took me to a very
senior dermatologist. He advised to check stools and blood. I had thread
worm infestation, so de-worming was done, ointment meladinine and
exposure to sunlight was advised along with 5 injections of b-plex
forte. Within six months most of the spots vanished. Few spots on ankle
and shin remained. Stronger treatment with tablets meladinine, tablet
mexaform etc. was given which did not suit me. My complexion became very
dark as if burnt and I used to develop acidity and giddiness. So the
treatment was discontinued and intradermal injections (most probably
bawachi oil) were given. They were very painful. I could not walk
properly for a week after the injection. I used to bear the excruciating
pain thinking that my family is doing so much for me so I must bear it
for their sake and should not make them feel sad. Those five injections
did not give any pigmentation and were stopped to my great relief.
My close relatives were very much concerned and used to suggest some
medicines or doctors. After Allopathic treatment, one Ayurvedic
treatment was started as per recommendations of my aunt. Some powder,
lep (ointment / cream) with gomutra (Cows's urine) and kadha (syrup)
were given. I was suggested to follow nirjali upawas (fasting for whole
day without even having water) on Thursdays and to visit temple and do
101 pradakshinas(circumambulation). My cousin used to do the fast and
pradakshinawith me just to make me comfortable. It didn't help much and
to apply gomutra during school days was very difficult. The treatment
got discontinued in a year. I was in 9th standard and had little time
for time-consuming treatments. Instead, I started wearing long skirts
and saree at the age of 13 years. 4 spots on my legs were stable and I
was at peace for time being.
I went into depression around this period, got secluded, was irritable
and cranky. My mother noticed it and advised me to read 'Ramayana'
during school holidays. I borrowed the nine volumes of Ramayana from my
uncle's library and read it all. I realised that everybody has to suffer
in some form or the other. Even a king like Rama was no exception to it.
We must look at people who are less fortunate than us in many aspects of
life and yet live happily. Today I feel it was the day of acceptance.
During my medical graduation our dermatologist teacher suggested
dermabrasion and plastic surgery. Dermabrasion under Ethyl Chloride
spray was not a pleasant experience as pain of thawing was much more
than expected and the patch became black but surrounding skin exposed to
spray became depigmented. One small patch was cut and skin sutured as
plastic surgery, which was not done properly leading to wound gaping and
I was with bandage on my ankle for one full month.
I continued with something or the other like steroid creams,
antimalarials, oral lactobacilli and what not. Ointment Ratino-a caused
some sort of reaction reactivating stable Vitiligo. I fared badly to
oral steroids, developed bleeding gums and so many problems leading to
poor health.
One expert homeopathic doctor relieved me of all the side effects. 95%
of my Vitiligo came under control. He used to give one dose if new patch
appeared or existing patches start spreading and things used to come
under control. His death made me feel like an orphan.
Six years later I decided that I must concentrate on treatment of few
remaining patches and get cured. I was suggested PUVA therapy (Psoralen + UVA
treatment for Eczema, Psoriasis , graft-versus-host
disease, Vitiligo and Mycosis fungoides.) In second sitting I think
exposure time was prolonged as the nurse who administered it forgot to
switch off UVA light. By evening severe burning sensation developed. In
the morning my right ear was white, next day left eye and so on and so
forth. In next 6 months I was 95% depigmented. (Note: Everybody is not
so sensitive to UVA but enough precaution should be taken.) It took me
almost 2 years to depigment totally. It was tough time for me and my
close ones. I did not dare to look in the mirror for those 2 years. Thus
began my second inning of life as a 'foreigner'.
Over the years I have overcome the anxiety. After completing my medical
graduation I started practicing as a General Surgeon and got associated
with many social organizations holding honorable positions:
Founder President, 'Shweta Association', a Vitiligo Self Help
Support Group